We started the year out with the CF team being involved in our lives. We saw them weekly to start with, slowly going to 2 weekly, then 3 but never got more than 4 weeks away. We had Doctors, the CF specialist nurse, the dietician, the physio, and we saw the nurses in clinic too. We then had ophthalmology involved, we quickly had the genetics team involved, then the CDC which included the physio, speech and language therapist, the occupational therapist and the community paediatrician. we also got referred to neurologist dept. As well as all that Audiology decided they would like to keep an eye on her as well. I mean why the hell not!!!!!! I had, I’m pretty sure, weekly appointments, because we also had our health visitor and own doctors check ups with her. Plus vaccinations. Plus I’d just had a baby so had to have a couple check ups post hospital since it was c-section.

To say I don’t like people, well, that is what you would say if you knew me!! haha!!

I felt like my punishment was upon me with all these blummin people I suddenly had to converse with and didn’t have a choice since it was for Lauren.

I quickly found my style, I liked blunt to the point, hard working, know there stuff, no sugar coating, and no hidden agenda kind of people.

I came across a Dr that wasn’t the latter, so I made a few phone calls and sacked the witch. She lied to us and had the agenda of primarily wanting to find out how and what caused Lauren’s brain malformations so she could have that under her belt. She went behind my back trying to get Jonathan to agree to letting Lauren have a lumbar puncture to fulfil her agenda. What a (insert choice of curse word here) ! When she had asked me, I told her no and that I was going to ask our Genteics consultants opinion on the matter before changing my mind. She did not like being told no!! She told me that the Genetics Consultant wouldn’t know what she was trying to do because she’d discussed it with neurology and they would be looking for different things. So I rang Genetics Consultant Angus Dobbie (what a guy!) and told him what tests she wanted to do, asked his opinion on them and told him what she’d said. He replied that he was in the meeting with neurology and they decided the tests together. So he didn’t know why she said what she did. So I asked him how important a lumbar puncture was and he said it was one of the last options when everything else might have failed to give answers so don’t worry about it now. So I was really glad I’d told her no. I now despised the woman and my baby was not going to be looked after by her. So, we sacked her and now see a wonderful Doctor, Dr Bowring. She is lovely. Helpful. Kind. And seems to actually care about my child. She left the research to be done by genetics as well!!

Only recently (2014) have I come across another professional I cannot cope with. We have also been able to change who we see here but that one will remain nameless, profession and person! 🙂

To say my head spun sometimes was an understatement. All this was on top of living every day with the issues at hand!

Take a breath, and concentrate on the smile, April!!