Hahaha! Oh how I wish some days I could lock us in the house, speak to no one and live a very bland, uninteresting to the naked eye kind of life and just…be!

Other days I love that we get to get out of the house finally and see other humans.

This winter was especially hard for Lauren. She never shows it. She is literally always happy! I’d say I need some of what she is on, but I feed her it and know that it comes from somewhere deep within her soul, her excitement and love of living. It’s infectious.

Winter continues for us. She is still unwell and may end up back on IV’s. This is normal for us though. We just have to go with the flow. I’m not happy about it. But Jonathan and I can handle them at home almost without blip now so administering them doesn’t cause me worry. The WHY we have to, in a word…Does!!

I am trying my best from foods, holistic care and mostly using essential oils with her to try keep things like this away. I know in the back of my mind that that will be nigh on impossible. I believe I can keep some of those things away and think I definitely do (we definitely do-Jonnie loves the oils for Lauren!), but CF is a killer. I hate CF.

We will keep plodding on in our seemingly plain lives, we will keep doing all we can possibly think of to aid Lauren to have the very best life possible, and we will do it with a contagious smile upon our faces because even when we do not want to smile and sometimes in the midst of tears, our lovely Lauren spreads her joy and that infectious smile and makes something that could be deemed just ordinary a very exceptional slice of joy.