Life is never boring that’s for sure. We are still trying to sort a school place out for Lauren. Man she is SICK of me haha!!

I can’t even begin to explain who went wrong and how it’s all gone wrong, but we think there’s an actual plan in place now to have Lauren in school in the next few months! It’s exhausting. Mentally exhausting. Jonathan has done lots of the liasing because my brain is fried and he noticed and took over lots of the tasks that we’ve needed to do.

We are currently in disagreement resolution. We are submitting tribunal papers this evening. If we end up there then so be it. She needs school, Skipton school is the only close suitable one. So for now that’s our plan. We’ll see how it plays out !!

Lauren’s weight has increased twice now by a 1KG each time, and so we are now waiting to see when the bronchoscopy will be to check the progress of the bacteria infection in her lungs. We have postponed the gastrostomy until/or if she plateaus in weight and then if that happens we’ll jump back on the bandwagon of waiting list and get that done too. We feel like we waited all of summer and had they done it already they would have relieved some stress, but they didn’t and so we wait to see what her body is doing now that she’s eating more and hopefully sorting herself out!

Man I love wating, it’s like a game of who will snap first, me, or me hahaha!!

Will keep you posted on her progress and the schooling situation once we know anything!!

🙂